Edward Dove

Prof Edward Dove

Professor of Law

Email edward.dove@mu.ie

Biography

Edward (Ted) Dove is Professor of Law at the School of Law and Criminology, Maynooth University (having joined the School in July 2024), and an Honorary Professor at Edinburgh Law School.

He holds a Bachelor of Arts degree (BA) in Political Science and Civil Law and Common Law degrees (BCL, LLB) from McGill University, a Master of Laws degree (LLM) from Columbia University, and a PhD in Law from the University of Edinburgh.

Ted’s primary research interests are in the areas of health privacy law, research ethics governance, and medical law.

He is a member of Maynooth University's Social Research Ethics Sub-Committee and the University's Assisting Living and Learning (ALL) Institute (https://www.maynoothuniversity.ie/all-institute).

Ted has been involved as a Co-Investigator of the Horizon Europe-funded project, Challenges and Innovative Changes in Research Ethics Reviews (“CHANGER”) (https://changer-project.eu/), which aims to promote changes in research ethics reviews that strengthen the capacities of researchers to incorporate ethical judgements in the project design and implementation, and to support research ethics committees to address new challenges posed by new technologies and new research practices.

Currently, Ted is a member of several ethics advisory boards of research projects (funded by Horizon Europe and other research funders) and is an Editor of the journal International Data Privacy Law. Ted is also currently an Editorial Board member of the European Journal of Health Law and the open access journal Research Ethics.

Ted has previously served as a member of the National Data Guardian's Panel, which advises on the state of information governance across the health and care system in England, and has served as the UK National Contact for the European Association of Health Law (EAHL) and the UK representative for the European Network of Research Ethics Committees (EUREC). Formerly he was the Coordinator of the Regulatory and Ethics Work Stream of the Global Alliance for Genomics and Health, and lead drafter of its Framework for Responsible Sharing of Genomic and Health-Related Data, which has since been translated into 14 languages.

Among other works, Ted is the author of the open access monograph Regulatory Stewardship of Health Research: Navigating Participant Protection and Research Promotion (Edward Elgar, 2020); editor of Confidentiality, Privacy, and Data Protection in Biomedicine: International Concepts and Issues (Routledge, 2025); co-editor of Law and Legacy in Medical Jurisprudence: Essays in Honour of Graeme Laurie (Cambridge University Press, 2022); co-editor of the open access volume Promoting the “Human” in Law, Policy, and Medicine: Essays in Honour of Bartha Maria Knoppers (Brill, 2025); co-editor of the open access volume The Cambridge Handbook of Health Research Regulation (Cambridge University Press, 2021); and co-author of two editions of one of the leading medical law textbooks in the UK, Mason and McCall Smith’s Law and Medical Ethics (12th edn, Oxford University Press, 2023).

Ted is currently working on three book projects: (1) a textbook on health privacy law, to be published by Edward Elgar; (2) a monograph with Prof Mark Taylor (Melbourne Law School) on reasonable expectations of health data, to be published by Cambridge University Press; and (3) an edited research handbook on medical jurisprudence, to be published by Edward Elgar.

Ted teaches several modules in the School of Law and Criminology, including Law of Torts (LW151) and Medical Law (LW317) at undergraduate level, and Health Privacy Law (LW654) at postgraduate level.

Research Publications

Book

	Year	Publication
	2023	Anne-Maree Farrell; Edward S. Dove (2023) Mason and McCall Smith's Law and Medical Ethics. Oxford: Oxford University Press. [DOI]
	2021	Laurie, G.; Dove, E.; Ganguli-Mitra, A.; McMillan, C.; Postan, E.; Sethi, N.; Sorbie, A. (2021) The Cambridge Handbook of Health Research Regulation. [Link] [DOI]
	2020	Dove, E.S. (2020) Regulatory Stewardship of Health Research: Navigating Participant Protection and Research Promotion. [Link] [DOI]
	2019	Graeme T. Laurie; Shawn H.E. Harmon; Edward S. Dove (2019) Mason and McCall Smith's Law and Medical Ethics, 11th Edition. Oxford: Oxford University Press.

Peer Reviewed Journal

	Year	Publication
	2024	Becker, R.; Chokoshvili, D.; Thorogood, A.; Dove, E.S.; Molnár-Gábor, F.; Ziaka, A.; Tzortzatou-Nanopoulou, O.; Comandè, G. (2024) 'Purpose definition as a crucial step for determining the legal basis under the GDPR: implications for scientific research'. Journal of Law and the Biosciences, 11 . [Link] [DOI]
	2024	Lawson, J.; Rahimzadeh, V.; Baek, J.; Dove, E.S. (2024) 'Achieving Procedural Parity in Managing Access to Genomic and Related Health Data: A Global Survey of Data Access Committee Members'. Biopreservation and Biobanking, 22 . [Link] [DOI]
	2024	Dove, E.S. (2024) 'Psychiatric Illness and Clinical Negligence: When Can “Secondary Victims” Successfully Claim for Damages? Recent Developments from the United Kingdom'. Journal of Bioethical Inquiry, . [Link] [DOI]
	2024	Rahimzadeh, V.; Baek, J.; Lawson, J.; Dove, E.S. (2024) 'A qualitative interview study to determine barriers and facilitators of implementing automated decision support tools for genomic data access'. BMC Medical Ethics, 25 . [Link] [DOI]
	2023	Edward S Dove; Cristina Douglas (2023) 'Ethics governance in Scottish universities: how can we do better? A qualitative study'. Research Ethics, . [Link] [DOI]
	2023	Edward S Dove (2023) 'Carolyn Adams, Judy Allen, and Felicity Flack, Sharing Linked Data for Health Research: Toward Better Decision Making'. Medical Law Review, . [Link] [DOI]
	2023	Ekezie, W.; Martin, C.A.; Baggaley, R.F.; Teece, L.; Nazareth, J.; Pan, D.; Sze, S.; Bryant, L.; Woolf, K.; Gray, L.J.; Khunti, K.; Pareek, M.; Nellums, L.; Guyatt, A.L.; John, C.; McManus, I.C.; Abubakar, I.; Gupta, A.; Abrams, K.R.; Tobin, M.D.; Wain, L.; Carr, S.; Dove, E.; Ford, D.; Free, R. (2023) 'Association between ethnicity and migration status with the prevalence of single and multiple long-term conditions in UK healthcare workers'. BMC Medicine, 21 . [Link] [DOI]
	2022	Martin, C.A.; Pan, D.; Nazareth, J.; Aujayeb, A.; Bryant, L.; Carr, S.; Gray, L.J.; Gregary, B.; Gupta, A.; Guyatt, A.L.; Gopal, A.; Hine, T.; John, C.; McManus, I.C.; Melbourne, C.; Nellums, L.B.; Reza, R.; Simpson, S.; Tobin, M.D.; Woolf, K.; Zingwe, S.; Khunti, K.; Pareek, M.; Pareek, M.; Nellums, L.B.; McManus, I.C.; Abubakar, I.; Abrams, K.R.; Wain, L.; Dove, E.; Ford, D.; Free, R. (2022) 'Access to personal protective equipment in healthcare workers during the COVID-19 pandemic in the United Kingdom: results from a nationwide cohort study (UK-REACH)'. BMC Health Services Research, 22 . [Link] [DOI]
	2022	Rahimzadeh, V.; Lawson, J.; Rushton, G.; Dove, E.S. (2022) 'Leveraging Algorithms to Improve Decision-Making Workflows for Genomic Data Access and Management'. Biopreservation and Biobanking, 20 . [Link] [DOI]
	2022	Rhiannon L. Frowde; Edward S. Dove; Graeme T. Laurie (2022) 'Reconciling fragmented sectors of health research regulation: toward an ecosystem of processual regulation'. Humanities and Social Sciences Communications, . [Link] [DOI]
	2022	Vasiliki Rahimzadeh; Jonathan Lawson; Jinyoung Baek; Edward S. Dove (2022) 'Automating Justice: An Ethical Responsibility of Computational Bioethics'. The American Journal of Bioethics, . [Link] [DOI]
	2022	Veli, N.; Martin, C.A.; Woolf, K.; Nazareth, J.; Pan, D.; Al-Oraibi, A.; Baggaley, R.F.; Bryant, L.; Nellums, L.B.; Gray, L.J.; Khunti, K.; Pareek, M.; Guyatt, A.L.; John, C.; McManus, I.C.; Abubakar, I.; Gupta, A.; Abrams, K.R.; Tobin, M.D.; Wain, L.; Carr, S.; Dove, E.; Ford, D.; Free, R. (2022) 'Hesitancy for receiving regular SARS-CoV-2 vaccination in UK healthcare workers: a cross-sectional analysis from the UK-REACH study'. BMC Medicine, 20 . [Link] [DOI]
	2022	Reed-Berendt, R.; Dove, E.S.; Pareek, M. (2022) 'The Ethical Implications of Big Data Research in Public Health: “Big Data Ethics by Design” in the UK-REACH Study'. Ethics and Human Research, 44 . [Link] [DOI]
	2022	Edward S. Dove; Ruby Reed-Berendt; Manish Pareek; Laura Gray; Laura B. Nellums; Anna L. Guyatt; Catherine Johns; I. Chris McManus; Katherine Woolf; Ibrahim Abubakar; Amit Gupta; Keith R. Abrams; Martin D. Tobin; Louise Wain; Sue Carr; Kamlesh Khunti; David Ford; Robert Free (2022) '“Data makes the story come to life:” understanding the ethical and legal implications of Big Data research involving ethnic minority healthcare workers in the United Kingdom—a qualitative study'. BMC Medical Ethics, . [Link] [DOI]
	2022	Regina Becker; Davit Chokoshvili; Giovanni Comandé; Edward S. Dove; Alison Hall; Colin Mitchell; Fruzsina Molnár-Gábor; Pilar Nicolàs; Sini Tervo; Adrian Thorogood (2022) 'Secondary Use of Personal Health Data: When Is It “Further Processing” Under the GDPR, and What Are the Implications for Data Controllers?'. European Journal of Health Law, . [Link] [DOI]
	2021	Dove, E.S.; Chen, J. (2021) 'What does it mean for a data subject to make their personal data 'manifestly public'? An analysis of GDPR Article 9(2)(e)'. International Data Privacy Law, 11 . [Link] [DOI]
	2021	Gaille, M.; Horn, R.; Bale, M.; Bourgain, C.; Buchanan, J.; Cambon-Thomsen, A.; Chneiweiss, H.; Clarke, A.; Dove, E.; Guchet, X.; Hallowell, N.; Kerasidou, A.; Lucassen, A.; Maleady-Crowe, F.; Merchant, J.; Parker, M.; Soulier, A.; Vassy, C. (2021) 'The ethics of genomic medicine: redefining values and norms in the UK and France'. European Journal of Human Genetics, 29 . [Link] [DOI]
	2021	Judd, J.A.; Canestrari, J.; Clark, R.; Joseph, A.; Lapierre, P.; Lasek-Nesselquist, E.; Mir, M.; Palumbo, M.; Smith, C.; Stone, M.; Upadhyay, A.; Wirth, S.E.; Dedrick, R.M.; Meier, C.G.; Russell, D.A.; Dills, A.; Dove, E.; Kester, J.; Wolf, I.D.; Zhu, J.; Rubin, E.R.; Fortune, S.; Hatfull, G.F.; Gray, T.A.; Wade, J.T.; Derbyshire, K.M. (2021) 'A mycobacterial systems resource for the research community'. mBio, 12 . [Link] [DOI]
	2021	Gogoi, M.; Reed-Berendt, R.; Al-Oraibi, A.; Hassan, O.; Wobi, F.; Gupta, A.; Abubakar, I.; Dove, E.; Nellums, L.B.; Pareek, M. (2021) 'Ethnicity and COVID-19 outcomes among healthcare workers in the UK: UK-REACH ethico-legal research, qualitative research on healthcare workers' experiences and stakeholder engagement protocol'. BMJ Open, 11 . [Link] [DOI]
	2021	Madeleine J. Murtagh; Mavis Machirori; Clara L. Gaff; Mwenza T. Blell; Jantina de Vries; Megan Doerr; Edward S. Dove; Audrey Duncanson; Jillian Hastings Ward; Rachele Hendricks-Sturrup; Calvin W. L. Ho; Amber Johns; Yann Joly; Kazuto Kato; Keiko Katsui; Judit Kumuthini; Fiona Maleady-Crowe; Anna Middleton; Richard Milne; Joel T. Minion; Mogomotsi Matshaba; Stephanie Mulrine; Christine Patch; Rosalyn Ryan; William Viney (2021) 'Engaged genomic science produces better and fairer outcomes: an engagement framework for engaging and involving participants, patients and publics in genomics research and healthcare implementation'. Wellcome Open Research, . [Link] [DOI]
	2021	Ferretti, A.; Ienca, M.; Sheehan, M.; Blasimme, A.; Dove, E.S.; Farsides, B.; Friesen, P.; Kahn, J.; Karlen, W.; Kleist, P.; Liao, S.M.; Nebeker, C.; Samuel, G.; Shabani, M.; Rivas Velarde, M.; Vayena, E. (2021) 'Ethics review of big data research: What should stay and what should be reformed?'. BMC Medical Ethics, 22 . [Link] [DOI]
	2021	McMillan, C.; Dove, E.; Laurie, G.; Postan, E.; Sethi, N.; Sorbie, A. (2021) 'Beyond categorisation: refining the relationship between subjects and objects in health research regulation'. Law, Innovation and Technology, 13 . [Link] [DOI]
	2020	Frowde, R.; Dove, E.S.; Laurie, G.T. (2020) 'Fail to Prepare and you Prepare to Fail: the Human Rights Consequences of the UK Government’s Inaction during the COVID-19 Pandemic'. Asian Bioethics Review, 12 . [Link] [DOI]
	2020	Dove, E.S.; Chen, J. (2020) 'To What Extent Does the EU General Data Protection Regulation (GDPR) Apply to Citizen Scientist-Led Health Research with Mobile Devices?'. Journal of Law, Medicine and Ethics, 48 . [Link] [DOI]
	2020	Dove, E.S.; Chen, J. (2020) 'Should consent for data processing be privileged in health research? A comparative legal analysis'. International Data Privacy Law, 10 . [Link] [DOI]
	2020	Fletcher, I.; Birko, S.; Dove, E.S.; Laurie, G.T.; McMillan, C.; Postan, E.; Sethi, N.; Sorbie, A. (2020) 'Co-production and Managing Uncertainty in Health Research Regulation: A Delphi Study'. Health Care Analysis, 28 . [Link] [DOI]
	2019	Dove, E.S.; Chico, V.; Fay, M.; Laurie, G.; Lucassen, A.M.; Postan, E. (2019) 'Familial genetic risks: How can we better navigate patient confidentiality and appropriate risk disclosure to relatives?'. Journal of Medical Ethics, 45 . [Link] [DOI]
	2019	Mascalzoni, D.; Bentzen, H.B.; Budin-Ljøsne, I.; Bygrave, L.A.; Bell, J.; Dove, E.S.; Fuchsberger, C.; Hveem, K.; Mayrhofer, M.T.; Meraviglia, V.; O'Brien, D.R.; Pattaro, C.; Pramstaller, P.P.; Rakić, V.; Rossini, A.; Shabani, M.; Svantesson, D.J.B.; Tomasi, M.; Ursin, L.; Wjst, M.; Kaye, J. (2019) 'Are requirements to deposit data in research repositories compatible with the european union's general data protection regulation?'. Annals of Internal Medicine, 170 . [Link] [DOI]
	2019	Staunton, C.; Adams, R.; Botes, M.; Dove, E.S.; Horn, L.; Labuschaigne, M.; Loots, G.; Mahomed, S.; Makuba, J.; Olckers, A.; Pepper, M.S.; Pope, A.; Ramsay, M.; Loideain, N.N.; de Vries, J. (2019) 'Safeguarding the future of genomic research in South Africa: Broad consent and the Protection of Personal Information Act No. 4 of 2013'. South African Medical Journal, 109 . [Link] [DOI]
	2019	Dove, E.S. (2019) 'Requiring a Single IRB for Cooperative Research in the Revised Common Rule: What Lessons Can Be Learned from the UK and Elsewhere?'. Journal of Law, Medicine and Ethics, 47 . [Link] [DOI]
	2018	Murtagh, M.J.; Blell, M.T.; Butters, O.W.; Cowley, L.; Dove, E.S.; Goodman, A.; Griggs, R.L.; Hall, A.; Hallowell, N.; Kumari, M.; Mangino, M.; Maughan, B.; Mills, M.C.; Minion, J.T.; Murphy, T.; Prior, G.; Suderman, M.; Ring, S.M.; Rogers, N.T.; Roberts, S.J.; Van Der Straeten, C.; Viney, W.; Wiltshire, D.; Wong, A.; Walker, N.; Burton, P.R. (2018) 'Better governance, better access: Practising responsible data sharing in the METADAC governance infrastructure'. Human Genomics, 12 . [Link] [DOI]
	2018	Laurie, G.T.; Dove, E.S.; Ganguli-Mitra, A.; Fletcher, I.; McMillan, C.; Sethi, N.; Sorbie, A. (2018) 'Charting Regulatory Stewardship in Health Research: Making the Invisible Visible'. Cambridge Quarterly of Healthcare Ethics, 27 . [Link] [DOI]
	2018	Kaye, J.; Terry, S.F.; Juengst, E.; Coy, S.; Harris, J.R.; Chalmers, D.; Dove, E.S.; Budin-Ljøsne, I.; Adebamowo, C.; Ogbe, E.; Bezuidenhout, L.; Morrison, M.; Minion, J.T.; Murtagh, M.J.; Minari, J.; Teare, H.; Isasi, R.; Kato, K.; Rial-Sebbag, E.; Marshall, P.; Koenig, B.; Cambon-Thomsen, A. (2018) 'Including all voices in international datasharing governance'. Human Genomics, 12 . [Link] [DOI]
	2018	Taylor, M.J.; Dove, E.S.; Laurie, G.; Townend, D. (2018) 'When can the child speak for herself? The limits of parental consent in data protection law for health research'. Medical Law Review, 26 . [Link] [DOI]
	2018	Dove, E.S. (2018) 'The EU General Data Protection Regulation: Implications for International Scientific Research in the Digital Era'. Journal of Law, Medicine and Ethics, 46 . [Link] [DOI]
	2018	Dove, E.S.; Garattini, C. (2018) 'Expert perspectives on ethics review of international data-intensive research: Working towards mutual recognition'. Research Ethics, 14 . [Link] [DOI]
	2017	Joly, Y.; Salman, S.; Ngueng Feze, I.; Granados Moreno, P.; Stanton-Jean, M.; Lacey, J.; Labelle, M.; Dench, J.; Dove, E.S.; Atak, I.; Bellefleur, C.; Heinemann, T.; Langlais, H.; Love, R. (2017) 'DNA Testing for Family Reunification in Canada: Points to Consider'. Journal of International Migration and Integration, 18 . [Link] [DOI]
	2017	Dove, E.S.; Kelly, S.E.; Lucivero, F.; Machirori, M.; Dheensa, S.; Prainsack, B. (2017) 'Beyond individualism: Is there a place for relational autonomy in clinical practice and research?'. Clinical Ethics, 12 . [Link] [DOI]
	2016	Taylor-Alexander, S.; Dove, E.S.; Fletcher, I.; Mitra, A.G.; McMillan, C.; Laurie, G. (2016) 'Beyond regulatory compression: Confronting the liminal spaces of health research regulation'. Law, Innovation and Technology, 8 . [Link] [DOI]
	2016	Aicardi, C.; Del Savio, L.; Dove, E.S.; Lucivero, F.; Tempini, N.; Prainsack, B. (2016) 'Emerging ethical issues regarding digital health data. On the world medical association draft declaration on ethical considerations regarding health databases and biobanks'. Croatian Medical Journal, 57 . [Link] [DOI]
	2016	Dyke, S.O.M.; Dove, E.S.; Knoppers, B.M. (2016) 'Sharing health-related data: A privacy test?'. npj Genomic Medicine, 1 . [Link] [DOI]
	2016	Dove, E.S.; Townend, D.; Meslin, E.M.; Bobrow, M.; Littler, K.; Nicol, D.; De Vries, J.; Junker, A.; Garattini, C.; Bovenberg, J.; Shabani, M.; Lévesque, E.; Knoppers, B.M. (2016) 'Ethics review for international data-intensive research'. Science (New York, N.Y.), 351 . [Link] [DOI]
	2016	Birch, K.; Dove, E.S.; Chiappetta, M.; Gürsoy, U.K. (2016) 'Biobanks in Oral Health: Promises and Implications of Post-Neoliberal Science and Innovation'. OMICS A Journal of Integrative Biology, 20 . [Link] [DOI]
	2015	Burton, P.R.; Murtagh, M.J.; Boyd, A.; Williams, J.B.; Dove, E.S.; Wallace, S.E.; Tassd, A.M.; Little, J.; Chisholm, R.L.; Gaye, A.; Hveem, K.; Brookes, A.J.; Goodwin, P.; Fistein, J.; Bobrow, M.; Knoppers, B.M. (2015) 'Data Safe Havens in health research and healthcare'. Bioinformatics, 31 . [Link] [DOI]
	2015	Özdemir, V.; Kılıç, H.; Yıldırım, A.; Vayena, E.; Dove, E.S.; Güngör, K.; LLerena, A.; Şardaş, S. (2015) 'A Code of Ethics for Ethicists: What Would Pierre Bourdieu Say? “Do Not Misuse Social Capital in the Age of Consortia Ethics”'. American Journal of Bioethics, 15 . [Link] [DOI]
	2015	Birko, S.; Dove, E.S.; Özdemir, V.; Dalal, K. (2015) 'Evaluation of nine consensus indices in delphi foresight research and their dependency on delphi survey characteristics: A simulation study and debate on delphi design and interpretation'. PLoS ONE, 10 . [Link] [DOI]
	2015	Birko, S.; Dove, E.S.; Özdemir, V. (2015) 'A Delphi technology foresight study: Mapping social construction of scientific evidence on metagenomics tests for water safety'. PLoS ONE, 10 . [Link] [DOI]
	2015	Dove, E.S.; Joly, Y.; Tassé, A.M.; Knoppers, B.M.; Brookes, A.J.; Burton, P.; Chisholm, R.; Fortier, I.; Goodwin, P.; Harris, J.; Hveem, K.; Kaye, J.; Kent, A.; Lindpaintner, K.; Little, J.; Riegman, P.; Ripatti, S.; Stolk, R.; Bobrow, M.; Cambon-Thomsen, A.; Dressler, L.; Kato, K.; Rodriguez, L.L.; McPherson, T.; Nicolás, P.; Ouellette, F.; Romeo-Casabona, C.; Sarin, R.; Wallace, S.; Wiesner, G.; Wilson, J.; Zeps, N.; Simkevitz, H.; De Rienzo, A. (2015) 'Genomic cloud computing: Legal and ethical points to consider'. European Journal of Human Genetics, 23 . [Link] [DOI]
	2015	Dove, E.S. (2015) 'Biobanks, Data Sharing, and the Drive for a Global Privacy Governance Framework'. Journal of Law, Medicine and Ethics, 43 . [Link] [DOI]
	2014	Kosseim, P.; Dove, E.S.; Baggaley, C.; Meslin, E.M.; Cate, F.H.; Kaye, J.; Harris, J.R.; Knoppers, B.M. (2014) 'Building a data sharing model for global genomic research'. Genome Biology, 15 . [Link] [DOI]
	2014	Hekim, N.; Coşkun, Y.; Sinav, A.; Abou-Zeid, A.H.; Aǧirbaşli, M.; Akintola, S.O.; Aynacioǧlu, S.; Bayram, M.; Bragazzi, N.L.; Dandara, C.; Dereli, T.; Dove, E.S.; Elbeyli, L.; Endrenyi, L.; Erciyas, K.; Faris, J.; Ferguson, L.R.; Göǧüş, F.; Güngör, K.; Gürsoy, M.; Gürsoy, U.K.; Karaömerlioǧlu, M.A.; Kickbusch, I.; Kiliç, T.; Kilinç, M.; Kocagöz, T.; Lin, B.; Llerena, A.; Manolopoulos, V.G.; Nair, B.; Özkan, B.; Pang, T.; Şardaş, S.; Srivastava, S.; Toraman, C.; Üstün, K.; Warnich, L.; Wonkam, A.; Yakicier, M.C.; Yaşar, U.; Özdemir, V. (2014) 'Translating biotechnology to knowledge-based innovation, peace, and development? Deploy a science peace corps - An open letter to world leaders'. OMICS A Journal of Integrative Biology, 18 . [Link] [DOI]
	2014	Dove, E.S.; Knoppers, B.M.; Zawati, M.H. (2014) 'Towards an ethics safe harbor for global biomedical research'. Journal of Law and the Biosciences, 1 . [Link] [DOI]
	2014	Knoppers, B.M.; Harris, J.R.; Budin-Ljøsne, I.; Dove, E.S. (2014) 'A human rights approach to an international code of conduct for genomic and clinical data sharing'. Human Genetics, 133 . [Link] [DOI]
	2013	Özdemir, V.; Badr, K.F.; Dove, E.S.; Endrenyi, L.; Geraci, C.J.; Hotez, P.J.; Milius, D.; Neves-Pereira, M.; Pang, T.; Rotimi, C.N.; Sabra, R.; Sarkissian, C.N.; Srivastava, S.; Tims, H.; Zgheib, N.K.; Kickbusch, I. (2013) 'Crowd-funded micro-grants for genomics and big data: An actionable idea connecting small (Artisan) science, infrastructure science, and citizen philanthropy'. OMICS A Journal of Integrative Biology, 17 . [Link] [DOI]
	2013	Knoppers, B.M.; Dove, E.S.; Zawati, M.H. (2013) 'Demystifying Biobanks'. Hastings Center Report, 43 . [Link] [DOI]
	2013	Dove, E.S.; Knoppers, B.M.; Zawati, M.H. (2013) 'An ethics safe harbor for international genomics research?'. Genome Medicine, 5 . [Link] [DOI]
	2013	Dove, E.S.; Avard, D.; Black, L.; Knoppers, B.M. (2013) 'Emerging issues in paediatric health research consent forms in Canada: Working towards best practices'. BMC Medical Ethics, 14 . [Link] [DOI]
	2012	Dove, E.S.; Joly, Y.; Knoppers, B.M. (2012) 'Power to the people: A wiki-governance model for biobanks'. Genome Biology, 13 . [Link] [DOI]
	2012	Ozdemir, V.; Joly, Y.; Dove, E.S.; Karalis, A.; Avard, D.; Knoppers, B.M. (2012) 'Are We Asking the Right Ethics Questions on Drug Shortages? Suggestions for a Global and Anticipatory Ethics Framework'. American Journal of Bioethics, 12 . [Link] [DOI]
	2012	Dove, E.S.; Faraj, S.A.; Kolker, E.; Özdemir, V. (2012) 'Designing a post-genomics knowledge ecosystem to translate pharmacogenomics into public health action'. Genome Medicine, 4 . [Link] [DOI]
	2012	Joly, Y.; Dove, E.S.; Kennedy, K.L.; Bobrow, M.; Ouellette, B.F.F.; Dyke, S.O.M.; Kato, K.; Knoppers, B.M. (2012) 'Open science and community norms: Data retention and publication moratoria policies in genomics projects'. Medical Law International, 12 . [Link] [DOI]
	2012	Joly, Y.; Dove, E.S.; Knoppers, B.M.; Bobrow, M.; Chalmers, D. (2012) 'Data sharing in the post-genomic world: The experience of the international cancer genome consortium (ICGC) data access compliance office (DACO)'. PLoS Computational Biology, 8 . [Link] [DOI]
	2011	Ozdemir, V.; Rosenblatt, D.S.; Warnich, L.; Srivastava, S.; Tadmouri, G.O.; Aziz, R.K.; Reddy, P.J.; Manamperi, A.; Dove, E.S.; Joly, Y.; Zawati, M.H.; Hizel, C.; Yazan, Y.; John, L.; Vaast, E.; Ptolemy, A.S.; Faraj, S.A.; Kolker, E.; Cotton, R.G.H. (2011) 'Towards an ecology of collective innovation: Human variome project (HVP), rare disease consortium for autosomal loci (RADical) and data-enabled life sciences alliance (DELSA)'. Current Pharmacogenomics and Personalized Medicine, 9 . [Link] [DOI]
	2011	Dove, E.S. (2011) 'The genetic privacy carousel: A discourse on proposed genetic privacy bills and the co-evolution of law and science'. Current Pharmacogenomics and Personalized Medicine, 9 . [Link] [DOI]

Other Publication

	Year	Publication
	2024	Dove, E. (2024) Editorial: Researching research integrity – and saying goodbye. [Link] [DOI]
	2023	Dove, E.; Chatfield, K. (2023) Let’s do better: Improving research ethics knowledge, practice and systems of oversight. [Link] [DOI]
	2023	Chatfield, K.; Dove, E. (2023) Clarifying our policy on requiring ethics approval in submitted manuscripts. [Link] [DOI]
	2023	Edward Dove (2023) Confidentiality, public interest, and the human right to science: when can confidential information be used for the benefit of the wider community?. [Link] [DOI]
	2021	Thorogood, A.; Rehm, H.L.; Goodhand, P.; Page, A.J.H.; Joly, Y.; Baudis, M.; Rambla, J.; Navarro, A.; Nyronen, T.H.; Linden, M.; Dove, E.S.; Fiume, M.; Brudno, M.; Cline, M.S.; Birney, E. (2021) International federation of genomic medicine databases using GA4GH standards. [Link] [DOI]
	2021	Dove, E.S.; Taylor, M.J. (2021) Signalling Standards for Progress: Bridging the Divide between a Valid Consent to Use Patient Data under Data Protection Law and the Common Law Duty of Confidentiality. [Link] [DOI]
	2021	Rehm, H.L.; Page, A.J.H.; Smith, L.; Adams, J.B.; Alterovitz, G.; Babb, L.J.; Barkley, M.P.; Baudis, M.; Beauvais, M.J.S.; Beck, T.; Beckmann, J.S.; Beltran, S.; Bernick, D.; Bernier, A.; Bonfield, J.K.; Boughtwood, T.F.; Bourque, G.; Bowers, S.R.; Brookes, A.J.; Brudno, M.; Brush, M.H.; Bujold, D.; Burdett, T.; Buske, O.J.; Cabili, M.N.; Cameron, D.L.; Carroll, R.J.; Casas-Silva, E.; Chakravarty, D.; Chaudhari, B.P.; Chen, S.H.; Cherry, J.M.; Chung, J.; Cline, M.; Clissold, H.L.; Cook-Deegan, R.M.; Courtot, M.; Cunningham, F.; Cupak, M.; Davies, R.M.; Denisko, D.; Doerr, M.J.; Dolman, L.I.; Dove, E.S.; Dursi, L.J.; Dyke, S.O.M.; Eddy, J.A.; Eilbeck, K.; Ellrott, K.P.; Fairley, S.; Fakhro, K.A.; Firth, H.V.; Fitzsimons, M.S.; Fiume, M.; Flicek, P.; Fore, I.M.; Freeberg, M.A.; Freimuth, R.R.; Fromont, L.A.; Fuerth, J.; Gaff, C.L.; Gan, W.; Ghanaim, E.M.; Glazer, D.; Green, R.C.; Griffith, M.; Griffith, O.L.; Grossman, R.L.; Groza, T.; Guidry Auvil, J.M.; Guigó, R.; Gupta, D.; Haendel, M.A.; Hamosh, A.; Hansen, D.P.; Hart, R.K.; Hartley, D.M.; Haussler, D.; Hendricks-Sturrup, R.M.; Ho, C.W.L.; Hobb, A.E.; Hoffman, M.M.; Hofmann, O.M.; Holub, P.; Hsu, J.S.; Hubaux, J.P.; Hunt, S.E.; Husami, A.; Jacobsen, J.O.; Jamuar, S.S.; Janes, E.L.; Jeanson, F.; Jené, A.; Johns, A.L.; Joly, Y.; Jones, S.J.M.; Kanitz, A.; Kato, K.; Keane, T.M.; Kekesi-Lafrance, K. (2021) GA4GH: International policies and standards for data sharing across genomic research and healthcare. [Link] [DOI]
	2021	O’Doherty, K.C.; Shabani, M.; Dove, E.S.; Bentzen, H.B.; Borry, P.; Burgess, M.M.; Chalmers, D.; De Vries, J.; Eckstein, L.; Fullerton, S.M.; Juengst, E.; Kato, K.; Kaye, J.; Knoppers, B.M.; Koenig, B.A.; Manson, S.M.; McGrail, K.M.; McGuire, A.L.; Meslin, E.M.; Nicol, D.; Prainsack, B.; Terry, S.F.; Thorogood, A.; Burke, W. (2021) Toward better governance of human genomic data. [Link] [DOI]
	2021	Dove, E.S.; Chen, J.; Loideain, N.N. (2021) Raising standards for global data-sharing. [Link] [DOI]
	2021	Dove, E.; Sethi, N. (2021) Introduction. [Link] [DOI]
	2021	Joly, Y.; Huerne, K.; Arych, M.; Bombard, Y.; De Paor, A.; Dove, E.S.; Granados Moreno, P.; Ho, C.W.L.; Ho, C.H.; Van Hoyweghen, I.; Kim, H.; Lebret, A.; Minssen, T.; Ó. Cathaoir, K.; Prince, A.E.R.; Nair, A.P.S.; Otlowski, M.; Pepper, M.S.; Sladek, R.; Song, L.; Voigt, T.H.; Zawati, M.H.; Dalpé, G. (2021) The Genetic Discrimination Observatory: confronting novel issues in genetic discrimination. [Link] [DOI]
	2020	Thaldar, D.W.; Townsend, B.; Staunton, C.; Adams, R.; Botes, M.; Dove, E.S.; Horn, L.; Labuschaigne, M.; Loots, G.; Mahomed, S.; Olckers, A.; Pepper, M.S.; Pope, A.; Ramsay, M.; Ni Loideain, N.; De Vries, J. (2020) Privacy rights of human research participants in South Africa must be taken seriously. [Link] [DOI]
	2020	Joly, Y.; Dalpé, G.; Dupras, C.; Bévière-Boyer, B.; de Paor, A.; Dove, E.S.; Granados Moreno, P.; Ho, C.W.L.; Ho, C.H.; Ó Cathaoir, K.; Kato, K.; Kim, H.; Song, L.; Minssen, T.; Nicolás, P.; Otlowski, M.; Prince, A.E.R.; P. S. Nair, A.; Van Hoyweghen, I.; Voigt, T.H.; Yamasaki, C.; Bombard, Y. (2020) Establishing the International Genetic Discrimination Observatory. [Link] [DOI]
	2019	Nicol, D.; Eckstein, L.; Bentzen, H.B.; Borry, P.; Burgess, M.; Burke, W.; Chalmers, D.; Cho, M.; Dove, E.; Fullerton, S.; Ida, R.; Kato, K.; Kaye, J.; Koenig, B.; Manson, S.; McGrail, K.; Meslin, E.; O’Doherty, K.; Prainsack, B.; Shabani, M.; Tabor, H.; Thorogood, A.; de Vries, J. (2019) Consent insufficient for data release. [Link] [DOI]
	2018	Rothstein, M.A.; Harrell, H.L.; Saulnier, K.M.; Dove, E.S.; Fan, C.T.; Hung, T.H.; Nnamuchi, O.; Obadia, A.; Siegaland, G.; Knoppers, B.M. (2018) Broad consent for future research: International perspectives. [Link] [DOI]
	2017	Rahimzadeh, V.; Dove, E.S.; Knoppers, B.M. (2017) The sIRB System: A Single Beacon of Progress in the Revised Common Rule?. [Link] [DOI]
	2017	Shabani, M.; Dove, E.S.; Murtagh, M.; Knoppers, B.M.; Borry, P. (2017) Oversight of Genomic Data Sharing: What Roles for Ethics and Data Access Committees?. [Link] [DOI]
	2017	Özdemir, V.; Dove, E.S.; Gürsoy, U.K.; Şardaş, S.; Yıldırım, A.; Yılmaz, Ş.G.; Ömer Barlas, I.; Güngör, K.; Mete, A.; Srivastava, S. (2017) Personalized medicine beyond genomics: alternative futures in big data—proteomics, environtome and the social proteome. [Link] [DOI]
	2017	Townend, D.; Dove, E.S. (2017) Approaching ethics review equivalency through natural justice and a “sounding board” model for research ethics committees. [Link]
	2017	Dove, E.S.; Townend, D. (2017) Reimagining the ethics and governance of biomedicine: Introduction to the special issue. [Link]
	2017	Ganguli-Mitra, A.; Dove, E.S.; Laurie, G.T.; Taylor-Alexander, S. (2017) Reconfiguring social value in health research through the lens of liminality. [Link] [DOI]
	2016	Townend, D.; Dove, E.S.; Nicol, D.; Bovenberg, J.; Knoppers, B.M. (2016) Streamlining ethical review of data intensive research. [Link] [DOI]
	2016	Dove, E.S.; Thompson, B.; Knoppers, B.M. (2016) A step forward for data protection and biomedical research. [Link] [DOI]
	2016	Mascalzoni, D.; Dove, E.S.; Rubinstein, Y.; Dawkins, H.J.S.; Kole, A.; McCormack, P.; Woods, S.; Riess, O.; Schaefer, F.; Lochmüller, H.; Knoppers, B.M.; Hansson, M. (2016) Erratum: International Charter of principles for sharing bio-specimens and data (European Journal of Human Genetics (2015) 23 (721-728) DOI: 10.1038/ejhg.2014.197). [Link] [DOI]
	2015	Dove, E.S.; Prainsack, B. (2015) Ethical standards for research biobank donation: To the editor. [Link] [DOI]
	2015	Dove, E.S.; Barlas, Ö.; Birch, K.; Boehme, C.; Borda-Rodriguez, A.; Byne, W.M.; Chaverneff, F.; Coşkun, Y.; Dahl, M.L.; Dereli, T.; Diwakar, S.; Elbeyli, L.; Endrenyi, L.; Eroʇlu-Kesim, B.; Ferguson, L.R.; Güngör, K.; Gürsoy, U.; Hekim, N.; Huzair, F.; Kaushik, K.; Kickbusch, I.; Klroʇlu, O.; Kolker, E.; Könönen, E.; Lin, B.; Llerena, A.; Malhan, F.; Nair, B.; Patrinos, G.P.; Sardaş, S.; Sert, Ö.; Srivastava, S.; Steuten, L.M.G.; Toraman, C.; Vayena, E.; Wang, W.; Warnich, L.; Özdemir, V. (2015) An Appeal to the Global Health Community for a Tripartite Innovation: An essential Diagnostics List, health in All Policies, and see-Through 21^st Century Science and Ethics. [Link] [DOI]
	2015	Erciyas, K.; Üstün, K.; Dove, E.S.; Birch, K.; Steuten, L.M.G.; Zeidán-Chuliá, F.; Gürsoy, M.; Könönen, E.; Kolker, E.; Özdemir, V.; Gürsoy, U.K. (2015) Personalized Dentistry Meets OMICS and One Health: From Cinderella of Healthcare to Mainstream?. [Link] [DOI]
	2015	Dove, E.S.; Mitra, A.G.; Laurie, G.T.; McMillan, C.; Taylor-Alexander, S. (2015) Elberte v. Latvia: Whose tissue is it anyway -Relational autonomy or the autonomy of relations?. [Link] [DOI]
	2014	Milius, D.; Dove, E.S.; Chalmers, D.; Dyke, S.O.M.; Kato, K.; Nicolás, P.; Ouellette, B.F.F.; Ozenberger, B.; Rodriguez, L.L.; Zeps, N.; Joly, Y. (2014) The International Cancer Genome Consortium's evolving data-protection policies. [Link] [DOI]
	2014	Dove, E.S.; Özdemir, V. (2014) Glocal Bioethics: When International IRB Collaboration Confronts Local Politics. [Link] [DOI]
	2014	Dove, E.S.; Townend, D.; Knoppers, B.M. (2014) Data protection and consent to biomedical research: A step forward?. [Link] [DOI]
	2014	Özdemir, V.; Endrenyi, L.; Aynacoǧlu, S.; Bragazzi, N.L.; Dandara, C.; Dove, E.S.; Ferguson, L.R.; Geraci, C.J.; Hafen, E.; Kesim, B.E.; Kolker, E.; Lee, E.J.D.; Llerena, A.; Nacak, M.; Shimoda, K.; Someya, T.; Srivastava, S.; Tomlinson, B.; Vayena, E.; Warnich, L.; Yaşar, U. (2014) Bernard lerer: Recipient of the 2014 inaugural werner kalow responsible innovation prize in global omics and personalized medicine (pacific rim association for clinical pharmacogenetics). [Link] [DOI]
	2014	Dove, E.S.; Tassé, A.M.; Knoppers, B.M. (2014) What are some of the ELSI challenges of international collaborations involving biobanks, global sample collection, and genomic data sharing and how should they be addressed?. [Link] [DOI]
	2014	Dove, E.S.; Özdemir, V. (2014) The epiknowledge of socially responsible innovation. [Link] [DOI]
	2014	Özdemir, V.; Downey, R.A.; Lin, B.; Dove, E.S.; Özkan, B.; Warnich, L.; Ferguson, L.R. (2014) Special Issue oMICS in AFRICA: Power to the people - Moving 21st century integrative biology from lab to village to innovation ecosystems. [Link] [DOI]
	2013	Özdemir, V.; Llerena, A.; McKinnon, R.A.; Srivastava, S.; Dove, E.S.; Ferguson, L.R.; Masellis, M.; Nair, B.; Gurwitz, D.; Warnich, L. (2013) CPPM 2013 onward: Building a socio-technical GPS for global personalized medicine - A welcome to editors-in-chief Adrián LLerena (Spain) and Ross A. McKinnon (Australia). [Link] [DOI]
	2013	Dove, E.S. (2013) Questioning the governance of pharmacogenomics and personalized medicine for global health. [Link] [DOI]
	2013	Dove, E.S.; Özdemir, V. (2013) 'Regular science' is inherently political. [Link] [DOI]
	2013	Özdemir, V.; Borda-Rodriguez, A.; Dove, E.S.; Ferguson, L.R.; Huzair, F.; Manolopoulos, V.G.; Masellis, M.; Milius, D.; Warnich, L.; Srivastav, S. (2013) Public health pharmacogenomics and the design principles for global public goods - moving genomics to responsible innovation. [Link] [DOI]
	2013	Dove, E.S.; Özdemir, V. (2013) All the postgenomic world is a stage: The actors and narrators required for translating pharmacogenomics into public health. [Link] [DOI]
	2012	Özdemir, V.; Fisher, E.; Dove, E.S.; Burton, H.; Wright, G.E.B.; Masellis, M.; Warnich, L. (2012) End of the beginning and public health pharmacogenomics: Knowledge in 'Mode 2' and P5 Medicine. [Link] [DOI]
	2012	Dove, E.S. (2012) To leave no stone unturned: The launch of a perspectives section for the journal. [Link] [DOI]
	2012	Knoppers, B.M.; Dove, E.S.; Litton, J.E.; Nietfeld, J.J. (2012) Questioning the limits of genomic privacy. [Link] [DOI]
	2012	Dandara, C.; Adebamowo, C.; de Vries, J.; Dove, E.S.; Fisher, E.; Gibbs, R.A.; Hotez, P.J.; Kickbusch, I.; Knoppers, B.M.; Masellis, M.; Oestergaard, M.Z.; Pang, T.; Rotimi, C.N. (2012) An idea whose time has come? An African foresight observatory on genomics medicine and data-intensive global science. [Link] [DOI]
	2012	Dove, E.S.; Özdemir, V.; Joly, Y. (2012) Harnessing omics sciences, population databases, and open innovation models for theranostics-guided drug discovery and development. [Link] [DOI]
	2011	Kamal, S.M.; Warnich, L.; Ferguson, L.R.; Srivastava, S.; Ray, S.; Avard, D.; Joly, Y.; le Huynh, M.; Page, M.; Masellis, M.; Dove, E.S.; Gurwitz, D.; Ozdemir, V. (2011) Forward look: Tenth anniversary of the human genome sequence and 21^st century postgenomics global health - A close up on Africa and women's health. [Link] [DOI]
	2011	Dove, E.S.; Joly, Y.; Knoppers, B.M. (2011) Trade-secret model: Legal limitations. [Link] [DOI]

Book Chapter

	Year	Publication
	2024	Joly, Y.; Dove, E.; Knoppers, B.M.; Nicol, D. (2024) 'The GA4GH Regulatory and Ethics Work Stream (REWS) at 10: An Interdisciplinary, Participative Approach to International Policy Development in Genomics' In: Perspectives in Law, Business and Innovation. [Link] [DOI]
	2022	Chen, J.; Dove, E.S.; Bhakuni, H. (2022) 'Explicit consent and alternative data protection processing grounds for health research' In: Research Handbook on EU Data Protection Law. [Link] [DOI]
	2021	Dove, E. (2021) 'Research Ethics Review' In: The Cambridge Handbook of Health Research Regulation. [Link] [DOI]
	2018	Dove, E.S. (2018) 'Collection and protection of genomic data' In: Routledge Handbook of Genomics, Health and Society. [Link] [DOI]
	2018	Mascalzoni, D.; Dove, E.S.; Rubinstein, Y.; Dawkins, H.J.S.; Kole, A.; McCormack, P.; Woods, S.; Riess, O.; Schaefer, F.; Lochmüller, H.; Knoppers, B.M.; Hansson, M. (2018) 'International charter of principles for sharing bio-specimens and data' In: Getting to Good: Research Integrity in the Biomedical Sciences. [Link] [DOI]
	2017	Dove, E.S.; Laurie, G.T.; Knoppers, B.M. (2017) 'Data Sharing and Privacy' In: Genomic and Precision Medicine: Foundations, Translation, and Implementation: Third Edition. [Link] [DOI]
	2015	Dove, E.S.; Phillips, M. (2015) 'Privacy law, data sharing policies, and medical data: A comparative perspective' In: Medical Data Privacy Handbook. [Link] [DOI]
	2015	Dove, E.S.; Joly, Y.; Knoppers, B.M. (2015) 'International genomic cloud computing: ‘Mining’ the terms of service' In: Privacy and Legal Issues in Cloud Computing. [Link] [DOI]

Conference Publication

	Year	Publication
	2017	Phillips, M.; Dove, E.S.; Knoppers, B.M. (2017) *Criminal Prohibition of Wrongful Re‑identification: Legal Solution or Minefield for Big Data?* [Link] [DOI]

Edited Book

	Year	Publication
	2024	Edward S. Dove (Ed.). (2024) Confidentiality, Privacy, and Data Protection in Biomedicine: International Concepts and Issues. Milton Park: Routledge,
	2022	Edward S. Dove;Niamh Nic Shuibhne (Ed.). (2022) Law and Legacy in Medical Jurisprudence: Essays in Honour of Graeme Laurie. Cambridge: Cambridge University Press,

Professional

Editorial / Academic Reviews

Amount	Role	From / To
International Data Privacy Law	Editor	-
Research Ethics	Member of the Editorial Board	-
European Journal of Health Law	Member of the Editorial Board	-

Teaching

Research

Undergraduate Studies

Postgraduate Studies

International

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