Prof Edward Dove
Biography
Edward (Ted) Dove is Professor of Law at the School of Law and Criminology, Maynooth University (having joined the School in July 2024), and an Honorary Professor at Edinburgh Law School.
He holds a Bachelor of Arts degree (BA) in Political Science and Civil Law and Common Law degrees (BCL, LLB) from McGill University, a Master of Laws degree (LLM) from Columbia University, and a PhD in Law from the University of Edinburgh.
Ted’s primary research interests are in the areas of health privacy law, research ethics governance, and medical law.
He is a member of Maynooth University's Social Research Ethics Sub-Committee and the University's Assisting Living and Learning (ALL) Institute (https://www.maynoothuniversity.ie/all-institute).
Ted has been involved as a Co-Investigator of the Horizon Europe-funded project, Challenges and Innovative Changes in Research Ethics Reviews (“CHANGER”) (https://changer-project.eu/), which aims to promote changes in research ethics reviews that strengthen the capacities of researchers to incorporate ethical judgements in the project design and implementation, and to support research ethics committees to address new challenges posed by new technologies and new research practices.
Currently, Ted is a member of several ethics advisory boards of research projects (funded by Horizon Europe and other research funders) and is an Editor of the journal International Data Privacy Law. Ted is also currently an Editorial Board member of the European Journal of Health Law and the open access journal Research Ethics.
Ted has previously served as a member of the National Data Guardian's Panel, which advises on the state of information governance across the health and care system in England, and has served as the UK National Contact for the European Association of Health Law (EAHL) and the UK representative for the European Network of Research Ethics Committees (EUREC). Formerly he was the Coordinator of the Regulatory and Ethics Work Stream of the Global Alliance for Genomics and Health, and lead drafter of its Framework for Responsible Sharing of Genomic and Health-Related Data, which has since been translated into 14 languages.
Among other works, Ted is the author of the open access monograph Regulatory Stewardship of Health Research: Navigating Participant Protection and Research Promotion (Edward Elgar, 2020); editor of Confidentiality, Privacy, and Data Protection in Biomedicine: International Concepts and Issues (Routledge, 2024); co-editor of Law and Legacy in Medical Jurisprudence: Essays in Honour of Graeme Laurie (Cambridge University Press, 2022); co-editor of the open access volume Promoting the “Human” in Law, Policy, and Medicine: Essays in Honour of Bartha Maria Knoppers (Brill, 2024); co-editor of the open access volume The Cambridge Handbook of Health Research Regulation (Cambridge University Press, 2021); and co-author of two editions of one of the leading medical law textbooks in the UK, Mason and McCall Smith’s Law and Medical Ethics (12th edn, Oxford University Press, 2023). He is currently working on a textbook on health privacy law, to be published by Edward Elgar, and a monograph with Prof Mark Taylor (Melbourne Law School) on reasonable expectations of health data, to be published by Cambridge University Press.
Ted teaches several modules in the School of Law and Criminology, including Law of Torts (LW151) and Medical Law (LW317) at undergraduate level, and Health Privacy Law (LW654) at postgraduate level.
Research Interests
health privacy law, health/medical law
Book
| Year | Publication | |
|---|---|---|
| 2023 | Anne-Maree Farrell; Edward S. Dove (2023) Mason and McCall Smith's Law and Medical Ethics. Oxford: Oxford University Press. [DOI] | |
| 2021 | Laurie, G.; Dove, E.; Ganguli-Mitra, A.; McMillan, C.; Postan, E.; Sethi, N.; Sorbie, A. (2021) The Cambridge Handbook of Health Research Regulation. [Link] [DOI] | |
| 2020 | Dove, E.S. (2020) Regulatory Stewardship of Health Research: Navigating Participant Protection and Research Promotion. [Link] [DOI] | |
| 2019 | Graeme T. Laurie; Shawn H.E. Harmon; Edward S. Dove (2019) Mason and McCall Smith's Law and Medical Ethics, 11th Edition. Oxford: Oxford University Press. |
Peer Reviewed Journal
| Year | Publication | |
|---|---|---|
| 2024 | Becker, R.; Chokoshvili, D.; Thorogood, A.; Dove, E.S.; Molnár-Gábor, F.; Ziaka, A.; Tzortzatou-Nanopoulou, O.; Comandè, G. (2024) 'Purpose definition as a crucial step for determining the legal basis under the GDPR: implications for scientific research'. Journal of Law and the Biosciences, 11 . [Link] [DOI] | |
| 2024 | Lawson, J.; Rahimzadeh, V.; Baek, J.; Dove, E.S. (2024) 'Achieving Procedural Parity in Managing Access to Genomic and Related Health Data: A Global Survey of Data Access Committee Members'. Biopreservation and Biobanking, 22 . [Link] [DOI] | |
| 2024 | Dove, E.S. (2024) 'Psychiatric Illness and Clinical Negligence: When Can “Secondary Victims” Successfully Claim for Damages? Recent Developments from the United Kingdom'. Journal of Bioethical Inquiry, . [Link] [DOI] | |
| 2024 | Rahimzadeh, V.; Baek, J.; Lawson, J.; Dove, E.S. (2024) 'A qualitative interview study to determine barriers and facilitators of implementing automated decision support tools for genomic data access'. BMC Medical Ethics, 25 . [Link] [DOI] | |
| 2023 | Edward S Dove; Cristina Douglas (2023) 'Ethics governance in Scottish universities: how can we do better? A qualitative study'. Research Ethics, . [Link] [DOI] | |
| 2023 | Edward S Dove (2023) 'Carolyn Adams, Judy Allen, and Felicity Flack, Sharing Linked Data for Health Research: Toward Better Decision Making'. Medical Law Review, . [Link] [DOI] | |
| 2023 | Ekezie, W.; Martin, C.A.; Baggaley, R.F.; Teece, L.; Nazareth, J.; Pan, D.; Sze, S.; Bryant, L.; Woolf, K.; Gray, L.J.; Khunti, K.; Pareek, M.; Nellums, L.; Guyatt, A.L.; John, C.; McManus, I.C.; Abubakar, I.; Gupta, A.; Abrams, K.R.; Tobin, M.D.; Wain, L.; Carr, S.; Dove, E.; Ford, D.; Free, R. (2023) 'Association between ethnicity and migration status with the prevalence of single and multiple long-term conditions in UK healthcare workers'. BMC Medicine, 21 . [Link] [DOI] | |
| 2022 | Martin, C.A.; Pan, D.; Nazareth, J.; Aujayeb, A.; Bryant, L.; Carr, S.; Gray, L.J.; Gregary, B.; Gupta, A.; Guyatt, A.L.; Gopal, A.; Hine, T.; John, C.; McManus, I.C.; Melbourne, C.; Nellums, L.B.; Reza, R.; Simpson, S.; Tobin, M.D.; Woolf, K.; Zingwe, S.; Khunti, K.; Pareek, M.; Pareek, M.; Nellums, L.B.; McManus, I.C.; Abubakar, I.; Abrams, K.R.; Wain, L.; Dove, E.; Ford, D.; Free, R. (2022) 'Access to personal protective equipment in healthcare workers during the COVID-19 pandemic in the United Kingdom: results from a nationwide cohort study (UK-REACH)'. BMC Health Services Research, 22 . [Link] [DOI] | |
| 2022 | Rahimzadeh, V.; Lawson, J.; Rushton, G.; Dove, E.S. (2022) 'Leveraging Algorithms to Improve Decision-Making Workflows for Genomic Data Access and Management'. Biopreservation and Biobanking, 20 . [Link] [DOI] | |
| 2022 | Rhiannon L. Frowde; Edward S. Dove; Graeme T. Laurie (2022) 'Reconciling fragmented sectors of health research regulation: toward an ecosystem of processual regulation'. Humanities and Social Sciences Communications, . [Link] [DOI] | |
| 2022 | Vasiliki Rahimzadeh; Jonathan Lawson; Jinyoung Baek; Edward S. Dove (2022) 'Automating Justice: An Ethical Responsibility of Computational Bioethics'. The American Journal of Bioethics, . [Link] [DOI] | |
| 2022 | Veli, N.; Martin, C.A.; Woolf, K.; Nazareth, J.; Pan, D.; Al-Oraibi, A.; Baggaley, R.F.; Bryant, L.; Nellums, L.B.; Gray, L.J.; Khunti, K.; Pareek, M.; Guyatt, A.L.; John, C.; McManus, I.C.; Abubakar, I.; Gupta, A.; Abrams, K.R.; Tobin, M.D.; Wain, L.; Carr, S.; Dove, E.; Ford, D.; Free, R. (2022) 'Hesitancy for receiving regular SARS-CoV-2 vaccination in UK healthcare workers: a cross-sectional analysis from the UK-REACH study'. BMC Medicine, 20 . [Link] [DOI] | |
| 2022 | Reed-Berendt, R.; Dove, E.S.; Pareek, M. (2022) 'The Ethical Implications of Big Data Research in Public Health: “Big Data Ethics by Design” in the UK-REACH Study'. Ethics and Human Research, 44 . [Link] [DOI] | |
| 2022 | Edward S. Dove; Ruby Reed-Berendt; Manish Pareek; Laura Gray; Laura B. Nellums; Anna L. Guyatt; Catherine Johns; I. Chris McManus; Katherine Woolf; Ibrahim Abubakar; Amit Gupta; Keith R. Abrams; Martin D. Tobin; Louise Wain; Sue Carr; Kamlesh Khunti; David Ford; Robert Free (2022) '“Data makes the story come to life:” understanding the ethical and legal implications of Big Data research involving ethnic minority healthcare workers in the United Kingdom—a qualitative study'. BMC Medical Ethics, . [Link] [DOI] | |
| 2022 | Regina Becker; Davit Chokoshvili; Giovanni Comandé; Edward S. Dove; Alison Hall; Colin Mitchell; Fruzsina Molnár-Gábor; Pilar Nicolàs; Sini Tervo; Adrian Thorogood (2022) 'Secondary Use of Personal Health Data: When Is It “Further Processing” Under the GDPR, and What Are the Implications for Data Controllers?'. European Journal of Health Law, . [Link] [DOI] | |
| 2021 | Dove, E.S.; Chen, J. (2021) 'What does it mean for a data subject to make their personal data 'manifestly public'? An analysis of GDPR Article 9(2)(e)'. International Data Privacy Law, 11 . [Link] [DOI] | |
| 2021 | Gaille, M.; Horn, R.; Bale, M.; Bourgain, C.; Buchanan, J.; Cambon-Thomsen, A.; Chneiweiss, H.; Clarke, A.; Dove, E.; Guchet, X.; Hallowell, N.; Kerasidou, A.; Lucassen, A.; Maleady-Crowe, F.; Merchant, J.; Parker, M.; Soulier, A.; Vassy, C. (2021) 'The ethics of genomic medicine: redefining values and norms in the UK and France'. European Journal of Human Genetics, 29 . [Link] [DOI] | |
| 2021 | Judd, J.A.; Canestrari, J.; Clark, R.; Joseph, A.; Lapierre, P.; Lasek-Nesselquist, E.; Mir, M.; Palumbo, M.; Smith, C.; Stone, M.; Upadhyay, A.; Wirth, S.E.; Dedrick, R.M.; Meier, C.G.; Russell, D.A.; Dills, A.; Dove, E.; Kester, J.; Wolf, I.D.; Zhu, J.; Rubin, E.R.; Fortune, S.; Hatfull, G.F.; Gray, T.A.; Wade, J.T.; Derbyshire, K.M. (2021) 'A mycobacterial systems resource for the research community'. mBio, 12 . [Link] [DOI] | |
| 2021 | Gogoi, M.; Reed-Berendt, R.; Al-Oraibi, A.; Hassan, O.; Wobi, F.; Gupta, A.; Abubakar, I.; Dove, E.; Nellums, L.B.; Pareek, M. (2021) 'Ethnicity and COVID-19 outcomes among healthcare workers in the UK: UK-REACH ethico-legal research, qualitative research on healthcare workers' experiences and stakeholder engagement protocol'. BMJ Open, 11 . [Link] [DOI] | |
| 2021 | Madeleine J. Murtagh; Mavis Machirori; Clara L. Gaff; Mwenza T. Blell; Jantina de Vries; Megan Doerr; Edward S. Dove; Audrey Duncanson; Jillian Hastings Ward; Rachele Hendricks-Sturrup; Calvin W. L. Ho; Amber Johns; Yann Joly; Kazuto Kato; Keiko Katsui; Judit Kumuthini; Fiona Maleady-Crowe; Anna Middleton; Richard Milne; Joel T. Minion; Mogomotsi Matshaba; Stephanie Mulrine; Christine Patch; Rosalyn Ryan; William Viney (2021) 'Engaged genomic science produces better and fairer outcomes: an engagement framework for engaging and involving participants, patients and publics in genomics research and healthcare implementation'. Wellcome Open Research, . [Link] [DOI] | |
| 2021 | Ferretti, A.; Ienca, M.; Sheehan, M.; Blasimme, A.; Dove, E.S.; Farsides, B.; Friesen, P.; Kahn, J.; Karlen, W.; Kleist, P.; Liao, S.M.; Nebeker, C.; Samuel, G.; Shabani, M.; Rivas Velarde, M.; Vayena, E. (2021) 'Ethics review of big data research: What should stay and what should be reformed?'. BMC Medical Ethics, 22 . [Link] [DOI] | |
| 2021 | McMillan, C.; Dove, E.; Laurie, G.; Postan, E.; Sethi, N.; Sorbie, A. (2021) 'Beyond categorisation: refining the relationship between subjects and objects in health research regulation'. Law, Innovation and Technology, 13 . [Link] [DOI] | |
| 2020 | Frowde, R.; Dove, E.S.; Laurie, G.T. (2020) 'Fail to Prepare and you Prepare to Fail: the Human Rights Consequences of the UK Government’s Inaction during the COVID-19 Pandemic'. Asian Bioethics Review, 12 . [Link] [DOI] | |
| 2020 | Dove, E.S.; Chen, J. (2020) 'To What Extent Does the EU General Data Protection Regulation (GDPR) Apply to Citizen Scientist-Led Health Research with Mobile Devices?'. Journal of Law, Medicine and Ethics, 48 . [Link] [DOI] | |
| 2020 | Dove, E.S.; Chen, J. (2020) 'Should consent for data processing be privileged in health research? A comparative legal analysis'. International Data Privacy Law, 10 . [Link] [DOI] | |
| 2020 | Fletcher, I.; Birko, S.; Dove, E.S.; Laurie, G.T.; McMillan, C.; Postan, E.; Sethi, N.; Sorbie, A. (2020) 'Co-production and Managing Uncertainty in Health Research Regulation: A Delphi Study'. Health Care Analysis, 28 . [Link] [DOI] | |
| 2019 | Dove, E.S.; Chico, V.; Fay, M.; Laurie, G.; Lucassen, A.M.; Postan, E. (2019) 'Familial genetic risks: How can we better navigate patient confidentiality and appropriate risk disclosure to relatives?'. Journal of Medical Ethics, 45 . [Link] [DOI] | |
| 2019 | Mascalzoni, D.; Bentzen, H.B.; Budin-Ljøsne, I.; Bygrave, L.A.; Bell, J.; Dove, E.S.; Fuchsberger, C.; Hveem, K.; Mayrhofer, M.T.; Meraviglia, V.; O'Brien, D.R.; Pattaro, C.; Pramstaller, P.P.; Rakić, V.; Rossini, A.; Shabani, M.; Svantesson, D.J.B.; Tomasi, M.; Ursin, L.; Wjst, M.; Kaye, J. (2019) 'Are requirements to deposit data in research repositories compatible with the european union's general data protection regulation?'. Annals of Internal Medicine, 170 . [Link] [DOI] | |
| 2019 | Staunton, C.; Adams, R.; Botes, M.; Dove, E.S.; Horn, L.; Labuschaigne, M.; Loots, G.; Mahomed, S.; Makuba, J.; Olckers, A.; Pepper, M.S.; Pope, A.; Ramsay, M.; Loideain, N.N.; de Vries, J. (2019) 'Safeguarding the future of genomic research in South Africa: Broad consent and the Protection of Personal Information Act No. 4 of 2013'. South African Medical Journal, 109 . [Link] [DOI] | |
| 2019 | Dove, E.S. (2019) 'Requiring a Single IRB for Cooperative Research in the Revised Common Rule: What Lessons Can Be Learned from the UK and Elsewhere?'. Journal of Law, Medicine and Ethics, 47 . [Link] [DOI] | |
| 2018 | Murtagh, M.J.; Blell, M.T.; Butters, O.W.; Cowley, L.; Dove, E.S.; Goodman, A.; Griggs, R.L.; Hall, A.; Hallowell, N.; Kumari, M.; Mangino, M.; Maughan, B.; Mills, M.C.; Minion, J.T.; Murphy, T.; Prior, G.; Suderman, M.; Ring, S.M.; Rogers, N.T.; Roberts, S.J.; Van Der Straeten, C.; Viney, W.; Wiltshire, D.; Wong, A.; Walker, N.; Burton, P.R. (2018) 'Better governance, better access: Practising responsible data sharing in the METADAC governance infrastructure'. Human Genomics, 12 . [Link] [DOI] | |
| 2018 | Laurie, G.T.; Dove, E.S.; Ganguli-Mitra, A.; Fletcher, I.; McMillan, C.; Sethi, N.; Sorbie, A. (2018) 'Charting Regulatory Stewardship in Health Research: Making the Invisible Visible'. Cambridge Quarterly of Healthcare Ethics, 27 . [Link] [DOI] | |
| 2018 | Kaye, J.; Terry, S.F.; Juengst, E.; Coy, S.; Harris, J.R.; Chalmers, D.; Dove, E.S.; Budin-Ljøsne, I.; Adebamowo, C.; Ogbe, E.; Bezuidenhout, L.; Morrison, M.; Minion, J.T.; Murtagh, M.J.; Minari, J.; Teare, H.; Isasi, R.; Kato, K.; Rial-Sebbag, E.; Marshall, P.; Koenig, B.; Cambon-Thomsen, A. (2018) 'Including all voices in international datasharing governance'. Human Genomics, 12 . [Link] [DOI] | |
| 2018 | Taylor, M.J.; Dove, E.S.; Laurie, G.; Townend, D. (2018) 'When can the child speak for herself? The limits of parental consent in data protection law for health research'. Medical Law Review, 26 . [Link] [DOI] | |
| 2018 | Dove, E.S. (2018) 'The EU General Data Protection Regulation: Implications for International Scientific Research in the Digital Era'. Journal of Law, Medicine and Ethics, 46 . [Link] [DOI] | |
| 2018 | Dove, E.S.; Garattini, C. (2018) 'Expert perspectives on ethics review of international data-intensive research: Working towards mutual recognition'. Research Ethics, 14 . [Link] [DOI] | |
| 2017 | Joly, Y.; Salman, S.; Ngueng Feze, I.; Granados Moreno, P.; Stanton-Jean, M.; Lacey, J.; Labelle, M.; Dench, J.; Dove, E.S.; Atak, I.; Bellefleur, C.; Heinemann, T.; Langlais, H.; Love, R. (2017) 'DNA Testing for Family Reunification in Canada: Points to Consider'. Journal of International Migration and Integration, 18 . [Link] [DOI] | |
| 2017 | Dove, E.S.; Kelly, S.E.; Lucivero, F.; Machirori, M.; Dheensa, S.; Prainsack, B. (2017) 'Beyond individualism: Is there a place for relational autonomy in clinical practice and research?'. Clinical Ethics, 12 . [Link] [DOI] | |
| 2016 | Taylor-Alexander, S.; Dove, E.S.; Fletcher, I.; Mitra, A.G.; McMillan, C.; Laurie, G. (2016) 'Beyond regulatory compression: Confronting the liminal spaces of health research regulation'. Law, Innovation and Technology, 8 . [Link] [DOI] | |
| 2016 | Aicardi, C.; Del Savio, L.; Dove, E.S.; Lucivero, F.; Tempini, N.; Prainsack, B. (2016) 'Emerging ethical issues regarding digital health data. On the world medical association draft declaration on ethical considerations regarding health databases and biobanks'. Croatian Medical Journal, 57 . [Link] [DOI] | |
| 2016 | Dyke, S.O.M.; Dove, E.S.; Knoppers, B.M. (2016) 'Sharing health-related data: A privacy test?'. npj Genomic Medicine, 1 . [Link] [DOI] | |
| 2016 | Dove, E.S.; Townend, D.; Meslin, E.M.; Bobrow, M.; Littler, K.; Nicol, D.; De Vries, J.; Junker, A.; Garattini, C.; Bovenberg, J.; Shabani, M.; Lévesque, E.; Knoppers, B.M. (2016) 'Ethics review for international data-intensive research'. Science (New York, N.Y.), 351 . [Link] [DOI] | |
| 2016 | Birch, K.; Dove, E.S.; Chiappetta, M.; Gürsoy, U.K. (2016) 'Biobanks in Oral Health: Promises and Implications of Post-Neoliberal Science and Innovation'. OMICS A Journal of Integrative Biology, 20 . [Link] [DOI] | |
| 2015 | Burton, P.R.; Murtagh, M.J.; Boyd, A.; Williams, J.B.; Dove, E.S.; Wallace, S.E.; Tassd, A.M.; Little, J.; Chisholm, R.L.; Gaye, A.; Hveem, K.; Brookes, A.J.; Goodwin, P.; Fistein, J.; Bobrow, M.; Knoppers, B.M. (2015) 'Data Safe Havens in health research and healthcare'. Bioinformatics, 31 . [Link] [DOI] | |
| 2015 | Özdemir, V.; Kılıç, H.; Yıldırım, A.; Vayena, E.; Dove, E.S.; Güngör, K.; LLerena, A.; Şardaş, S. (2015) 'A Code of Ethics for Ethicists: What Would Pierre Bourdieu Say? “Do Not Misuse Social Capital in the Age of Consortia Ethics”'. American Journal of Bioethics, 15 . [Link] [DOI] | |
| 2015 | Birko, S.; Dove, E.S.; Özdemir, V.; Dalal, K. (2015) 'Evaluation of nine consensus indices in delphi foresight research and their dependency on delphi survey characteristics: A simulation study and debate on delphi design and interpretation'. PLoS ONE, 10 . [Link] [DOI] | |
| 2015 | Birko, S.; Dove, E.S.; Özdemir, V. (2015) 'A Delphi technology foresight study: Mapping social construction of scientific evidence on metagenomics tests for water safety'. PLoS ONE, 10 . [Link] [DOI] | |
| 2015 | Dove, E.S.; Joly, Y.; Tassé, A.M.; Knoppers, B.M.; Brookes, A.J.; Burton, P.; Chisholm, R.; Fortier, I.; Goodwin, P.; Harris, J.; Hveem, K.; Kaye, J.; Kent, A.; Lindpaintner, K.; Little, J.; Riegman, P.; Ripatti, S.; Stolk, R.; Bobrow, M.; Cambon-Thomsen, A.; Dressler, L.; Kato, K.; Rodriguez, L.L.; McPherson, T.; Nicolás, P.; Ouellette, F.; Romeo-Casabona, C.; Sarin, R.; Wallace, S.; Wiesner, G.; Wilson, J.; Zeps, N.; Simkevitz, H.; De Rienzo, A. (2015) 'Genomic cloud computing: Legal and ethical points to consider'. European Journal of Human Genetics, 23 . [Link] [DOI] | |
| 2015 | Dove, E.S. (2015) 'Biobanks, Data Sharing, and the Drive for a Global Privacy Governance Framework'. Journal of Law, Medicine and Ethics, 43 . [Link] [DOI] | |
| 2014 | Kosseim, P.; Dove, E.S.; Baggaley, C.; Meslin, E.M.; Cate, F.H.; Kaye, J.; Harris, J.R.; Knoppers, B.M. (2014) 'Building a data sharing model for global genomic research'. Genome Biology, 15 . [Link] [DOI] | |
| 2014 | Hekim, N.; Coşkun, Y.; Sinav, A.; Abou-Zeid, A.H.; Aǧirbaşli, M.; Akintola, S.O.; Aynacioǧlu, S.; Bayram, M.; Bragazzi, N.L.; Dandara, C.; Dereli, T.; Dove, E.S.; Elbeyli, L.; Endrenyi, L.; Erciyas, K.; Faris, J.; Ferguson, L.R.; Göǧüş, F.; Güngör, K.; Gürsoy, M.; Gürsoy, U.K.; Karaömerlioǧlu, M.A.; Kickbusch, I.; Kiliç, T.; Kilinç, M.; Kocagöz, T.; Lin, B.; Llerena, A.; Manolopoulos, V.G.; Nair, B.; Özkan, B.; Pang, T.; Şardaş, S.; Srivastava, S.; Toraman, C.; Üstün, K.; Warnich, L.; Wonkam, A.; Yakicier, M.C.; Yaşar, U.; Özdemir, V. (2014) 'Translating biotechnology to knowledge-based innovation, peace, and development? Deploy a science peace corps - An open letter to world leaders'. OMICS A Journal of Integrative Biology, 18 . [Link] [DOI] | |
| 2014 | Dove, E.S.; Knoppers, B.M.; Zawati, M.H. (2014) 'Towards an ethics safe harbor for global biomedical research'. Journal of Law and the Biosciences, 1 . [Link] [DOI] | |
| 2014 | Knoppers, B.M.; Harris, J.R.; Budin-Ljøsne, I.; Dove, E.S. (2014) 'A human rights approach to an international code of conduct for genomic and clinical data sharing'. Human Genetics, 133 . [Link] [DOI] | |
| 2013 | Özdemir, V.; Badr, K.F.; Dove, E.S.; Endrenyi, L.; Geraci, C.J.; Hotez, P.J.; Milius, D.; Neves-Pereira, M.; Pang, T.; Rotimi, C.N.; Sabra, R.; Sarkissian, C.N.; Srivastava, S.; Tims, H.; Zgheib, N.K.; Kickbusch, I. (2013) 'Crowd-funded micro-grants for genomics and big data: An actionable idea connecting small (Artisan) science, infrastructure science, and citizen philanthropy'. OMICS A Journal of Integrative Biology, 17 . [Link] [DOI] | |
| 2013 | Knoppers, B.M.; Dove, E.S.; Zawati, M.H. (2013) 'Demystifying Biobanks'. Hastings Center Report, 43 . [Link] [DOI] | |
| 2013 | Dove, E.S.; Knoppers, B.M.; Zawati, M.H. (2013) 'An ethics safe harbor for international genomics research?'. Genome Medicine, 5 . [Link] [DOI] | |
| 2013 | Dove, E.S.; Avard, D.; Black, L.; Knoppers, B.M. (2013) 'Emerging issues in paediatric health research consent forms in Canada: Working towards best practices'. BMC Medical Ethics, 14 . [Link] [DOI] | |
| 2012 | Dove, E.S.; Joly, Y.; Knoppers, B.M. (2012) 'Power to the people: A wiki-governance model for biobanks'. Genome Biology, 13 . [Link] [DOI] | |
| 2012 | Ozdemir, V.; Joly, Y.; Dove, E.S.; Karalis, A.; Avard, D.; Knoppers, B.M. (2012) 'Are We Asking the Right Ethics Questions on Drug Shortages? Suggestions for a Global and Anticipatory Ethics Framework'. American Journal of Bioethics, 12 . [Link] [DOI] | |
| 2012 | Dove, E.S.; Faraj, S.A.; Kolker, E.; Özdemir, V. (2012) 'Designing a post-genomics knowledge ecosystem to translate pharmacogenomics into public health action'. Genome Medicine, 4 . [Link] [DOI] | |
| 2012 | Joly, Y.; Dove, E.S.; Kennedy, K.L.; Bobrow, M.; Ouellette, B.F.F.; Dyke, S.O.M.; Kato, K.; Knoppers, B.M. (2012) 'Open science and community norms: Data retention and publication moratoria policies in genomics projects'. Medical Law International, 12 . [Link] [DOI] | |
| 2012 | Joly, Y.; Dove, E.S.; Knoppers, B.M.; Bobrow, M.; Chalmers, D. (2012) 'Data sharing in the post-genomic world: The experience of the international cancer genome consortium (ICGC) data access compliance office (DACO)'. PLoS Computational Biology, 8 . [Link] [DOI] | |
| 2011 | Ozdemir, V.; Rosenblatt, D.S.; Warnich, L.; Srivastava, S.; Tadmouri, G.O.; Aziz, R.K.; Reddy, P.J.; Manamperi, A.; Dove, E.S.; Joly, Y.; Zawati, M.H.; Hizel, C.; Yazan, Y.; John, L.; Vaast, E.; Ptolemy, A.S.; Faraj, S.A.; Kolker, E.; Cotton, R.G.H. (2011) 'Towards an ecology of collective innovation: Human variome project (HVP), rare disease consortium for autosomal loci (RADical) and data-enabled life sciences alliance (DELSA)'. Current Pharmacogenomics and Personalized Medicine, 9 . [Link] [DOI] | |
| 2011 | Dove, E.S. (2011) 'The genetic privacy carousel: A discourse on proposed genetic privacy bills and the co-evolution of law and science'. Current Pharmacogenomics and Personalized Medicine, 9 . [Link] [DOI] |
Other Publication
| Year | Publication | |
|---|---|---|
| 2024 | Dove, E. (2024) Editorial: Researching research integrity – and saying goodbye. [Link] [DOI] | |
| 2023 | Dove, E.; Chatfield, K. (2023) Let’s do better: Improving research ethics knowledge, practice and systems of oversight. [Link] [DOI] | |
| 2023 | Chatfield, K.; Dove, E. (2023) Clarifying our policy on requiring ethics approval in submitted manuscripts. [Link] [DOI] | |
| 2023 | Edward Dove (2023) Confidentiality, public interest, and the human right to science: when can confidential information be used for the benefit of the wider community?. [Link] [DOI] | |
| 2021 | Thorogood, A.; Rehm, H.L.; Goodhand, P.; Page, A.J.H.; Joly, Y.; Baudis, M.; Rambla, J.; Navarro, A.; Nyronen, T.H.; Linden, M.; Dove, E.S.; Fiume, M.; Brudno, M.; Cline, M.S.; Birney, E. (2021) International federation of genomic medicine databases using GA4GH standards. [Link] [DOI] | |
| 2021 | Dove, E.S.; Taylor, M.J. (2021) Signalling Standards for Progress: Bridging the Divide between a Valid Consent to Use Patient Data under Data Protection Law and the Common Law Duty of Confidentiality. [Link] [DOI] | |
| 2021 | Rehm, H.L.; Page, A.J.H.; Smith, L.; Adams, J.B.; Alterovitz, G.; Babb, L.J.; Barkley, M.P.; Baudis, M.; Beauvais, M.J.S.; Beck, T.; Beckmann, J.S.; Beltran, S.; Bernick, D.; Bernier, A.; Bonfield, J.K.; Boughtwood, T.F.; Bourque, G.; Bowers, S.R.; Brookes, A.J.; Brudno, M.; Brush, M.H.; Bujold, D.; Burdett, T.; Buske, O.J.; Cabili, M.N.; Cameron, D.L.; Carroll, R.J.; Casas-Silva, E.; Chakravarty, D.; Chaudhari, B.P.; Chen, S.H.; Cherry, J.M.; Chung, J.; Cline, M.; Clissold, H.L.; Cook-Deegan, R.M.; Courtot, M.; Cunningham, F.; Cupak, M.; Davies, R.M.; Denisko, D.; Doerr, M.J.; Dolman, L.I.; Dove, E.S.; Dursi, L.J.; Dyke, S.O.M.; Eddy, J.A.; Eilbeck, K.; Ellrott, K.P.; Fairley, S.; Fakhro, K.A.; Firth, H.V.; Fitzsimons, M.S.; Fiume, M.; Flicek, P.; Fore, I.M.; Freeberg, M.A.; Freimuth, R.R.; Fromont, L.A.; Fuerth, J.; Gaff, C.L.; Gan, W.; Ghanaim, E.M.; Glazer, D.; Green, R.C.; Griffith, M.; Griffith, O.L.; Grossman, R.L.; Groza, T.; Guidry Auvil, J.M.; Guigó, R.; Gupta, D.; Haendel, M.A.; Hamosh, A.; Hansen, D.P.; Hart, R.K.; Hartley, D.M.; Haussler, D.; Hendricks-Sturrup, R.M.; Ho, C.W.L.; Hobb, A.E.; Hoffman, M.M.; Hofmann, O.M.; Holub, P.; Hsu, J.S.; Hubaux, J.P.; Hunt, S.E.; Husami, A.; Jacobsen, J.O.; Jamuar, S.S.; Janes, E.L.; Jeanson, F.; Jené, A.; Johns, A.L.; Joly, Y.; Jones, S.J.M.; Kanitz, A.; Kato, K.; Keane, T.M.; Kekesi-Lafrance, K. (2021) GA4GH: International policies and standards for data sharing across genomic research and healthcare. [Link] [DOI] | |
| 2021 | O’Doherty, K.C.; Shabani, M.; Dove, E.S.; Bentzen, H.B.; Borry, P.; Burgess, M.M.; Chalmers, D.; De Vries, J.; Eckstein, L.; Fullerton, S.M.; Juengst, E.; Kato, K.; Kaye, J.; Knoppers, B.M.; Koenig, B.A.; Manson, S.M.; McGrail, K.M.; McGuire, A.L.; Meslin, E.M.; Nicol, D.; Prainsack, B.; Terry, S.F.; Thorogood, A.; Burke, W. (2021) Toward better governance of human genomic data. [Link] [DOI] | |
| 2021 | Dove, E.S.; Chen, J.; Loideain, N.N. (2021) Raising standards for global data-sharing. [Link] [DOI] | |
| 2021 | Dove, E.; Sethi, N. (2021) Introduction. [Link] [DOI] | |
| 2021 | Joly, Y.; Huerne, K.; Arych, M.; Bombard, Y.; De Paor, A.; Dove, E.S.; Granados Moreno, P.; Ho, C.W.L.; Ho, C.H.; Van Hoyweghen, I.; Kim, H.; Lebret, A.; Minssen, T.; Ó. Cathaoir, K.; Prince, A.E.R.; Nair, A.P.S.; Otlowski, M.; Pepper, M.S.; Sladek, R.; Song, L.; Voigt, T.H.; Zawati, M.H.; Dalpé, G. (2021) The Genetic Discrimination Observatory: confronting novel issues in genetic discrimination. [Link] [DOI] | |
| 2020 | Thaldar, D.W.; Townsend, B.; Staunton, C.; Adams, R.; Botes, M.; Dove, E.S.; Horn, L.; Labuschaigne, M.; Loots, G.; Mahomed, S.; Olckers, A.; Pepper, M.S.; Pope, A.; Ramsay, M.; Ni Loideain, N.; De Vries, J. (2020) Privacy rights of human research participants in South Africa must be taken seriously. [Link] [DOI] | |
| 2020 | Joly, Y.; Dalpé, G.; Dupras, C.; Bévière-Boyer, B.; de Paor, A.; Dove, E.S.; Granados Moreno, P.; Ho, C.W.L.; Ho, C.H.; Ó Cathaoir, K.; Kato, K.; Kim, H.; Song, L.; Minssen, T.; Nicolás, P.; Otlowski, M.; Prince, A.E.R.; P. S. Nair, A.; Van Hoyweghen, I.; Voigt, T.H.; Yamasaki, C.; Bombard, Y. (2020) Establishing the International Genetic Discrimination Observatory. [Link] [DOI] | |
| 2019 | Nicol, D.; Eckstein, L.; Bentzen, H.B.; Borry, P.; Burgess, M.; Burke, W.; Chalmers, D.; Cho, M.; Dove, E.; Fullerton, S.; Ida, R.; Kato, K.; Kaye, J.; Koenig, B.; Manson, S.; McGrail, K.; Meslin, E.; O’Doherty, K.; Prainsack, B.; Shabani, M.; Tabor, H.; Thorogood, A.; de Vries, J. (2019) Consent insufficient for data release. [Link] [DOI] | |
| 2018 | Rothstein, M.A.; Harrell, H.L.; Saulnier, K.M.; Dove, E.S.; Fan, C.T.; Hung, T.H.; Nnamuchi, O.; Obadia, A.; Siegaland, G.; Knoppers, B.M. (2018) Broad consent for future research: International perspectives. [Link] [DOI] | |
| 2017 | Rahimzadeh, V.; Dove, E.S.; Knoppers, B.M. (2017) The sIRB System: A Single Beacon of Progress in the Revised Common Rule?. [Link] [DOI] | |
| 2017 | Shabani, M.; Dove, E.S.; Murtagh, M.; Knoppers, B.M.; Borry, P. (2017) Oversight of Genomic Data Sharing: What Roles for Ethics and Data Access Committees?. [Link] [DOI] | |
| 2017 | Özdemir, V.; Dove, E.S.; Gürsoy, U.K.; Şardaş, S.; Yıldırım, A.; Yılmaz, Ş.G.; Ömer Barlas, I.; Güngör, K.; Mete, A.; Srivastava, S. (2017) Personalized medicine beyond genomics: alternative futures in big data—proteomics, environtome and the social proteome. [Link] [DOI] | |
| 2017 | Townend, D.; Dove, E.S. (2017) Approaching ethics review equivalency through natural justice and a “sounding board” model for research ethics committees. [Link] | |
| 2017 | Dove, E.S.; Townend, D. (2017) Reimagining the ethics and governance of biomedicine: Introduction to the special issue. [Link] | |
| 2017 | Ganguli-Mitra, A.; Dove, E.S.; Laurie, G.T.; Taylor-Alexander, S. (2017) Reconfiguring social value in health research through the lens of liminality. [Link] [DOI] | |
| 2016 | Townend, D.; Dove, E.S.; Nicol, D.; Bovenberg, J.; Knoppers, B.M. (2016) Streamlining ethical review of data intensive research. [Link] [DOI] | |
| 2016 | Dove, E.S.; Thompson, B.; Knoppers, B.M. (2016) A step forward for data protection and biomedical research. [Link] [DOI] | |
| 2016 | Mascalzoni, D.; Dove, E.S.; Rubinstein, Y.; Dawkins, H.J.S.; Kole, A.; McCormack, P.; Woods, S.; Riess, O.; Schaefer, F.; Lochmüller, H.; Knoppers, B.M.; Hansson, M. (2016) Erratum: International Charter of principles for sharing bio-specimens and data (European Journal of Human Genetics (2015) 23 (721-728) DOI: 10.1038/ejhg.2014.197). [Link] [DOI] | |
| 2015 | Dove, E.S.; Prainsack, B. (2015) Ethical standards for research biobank donation: To the editor. [Link] [DOI] | |
| 2015 | Dove, E.S.; Barlas, Ö.; Birch, K.; Boehme, C.; Borda-Rodriguez, A.; Byne, W.M.; Chaverneff, F.; Coşkun, Y.; Dahl, M.L.; Dereli, T.; Diwakar, S.; Elbeyli, L.; Endrenyi, L.; Eroʇlu-Kesim, B.; Ferguson, L.R.; Güngör, K.; Gürsoy, U.; Hekim, N.; Huzair, F.; Kaushik, K.; Kickbusch, I.; Klroʇlu, O.; Kolker, E.; Könönen, E.; Lin, B.; Llerena, A.; Malhan, F.; Nair, B.; Patrinos, G.P.; Sardaş, S.; Sert, Ö.; Srivastava, S.; Steuten, L.M.G.; Toraman, C.; Vayena, E.; Wang, W.; Warnich, L.; Özdemir, V. (2015) An Appeal to the Global Health Community for a Tripartite Innovation: An essential Diagnostics List, health in All Policies, and see-Through 21st Century Science and Ethics. [Link] [DOI] | |
| 2015 | Erciyas, K.; Üstün, K.; Dove, E.S.; Birch, K.; Steuten, L.M.G.; Zeidán-Chuliá, F.; Gürsoy, M.; Könönen, E.; Kolker, E.; Özdemir, V.; Gürsoy, U.K. (2015) Personalized Dentistry Meets OMICS and One Health: From Cinderella of Healthcare to Mainstream?. [Link] [DOI] | |
| 2015 | Dove, E.S.; Mitra, A.G.; Laurie, G.T.; McMillan, C.; Taylor-Alexander, S. (2015) Elberte v. Latvia: Whose tissue is it anyway -Relational autonomy or the autonomy of relations?. [Link] [DOI] | |
| 2014 | Milius, D.; Dove, E.S.; Chalmers, D.; Dyke, S.O.M.; Kato, K.; Nicolás, P.; Ouellette, B.F.F.; Ozenberger, B.; Rodriguez, L.L.; Zeps, N.; Joly, Y. (2014) The International Cancer Genome Consortium's evolving data-protection policies. [Link] [DOI] | |
| 2014 | Dove, E.S.; Özdemir, V. (2014) Glocal Bioethics: When International IRB Collaboration Confronts Local Politics. [Link] [DOI] | |
| 2014 | Dove, E.S.; Townend, D.; Knoppers, B.M. (2014) Data protection and consent to biomedical research: A step forward?. [Link] [DOI] | |
| 2014 | Özdemir, V.; Endrenyi, L.; Aynacoǧlu, S.; Bragazzi, N.L.; Dandara, C.; Dove, E.S.; Ferguson, L.R.; Geraci, C.J.; Hafen, E.; Kesim, B.E.; Kolker, E.; Lee, E.J.D.; Llerena, A.; Nacak, M.; Shimoda, K.; Someya, T.; Srivastava, S.; Tomlinson, B.; Vayena, E.; Warnich, L.; Yaşar, U. (2014) Bernard lerer: Recipient of the 2014 inaugural werner kalow responsible innovation prize in global omics and personalized medicine (pacific rim association for clinical pharmacogenetics). [Link] [DOI] | |
| 2014 | Dove, E.S.; Tassé, A.M.; Knoppers, B.M. (2014) What are some of the ELSI challenges of international collaborations involving biobanks, global sample collection, and genomic data sharing and how should they be addressed?. [Link] [DOI] | |
| 2014 | Dove, E.S.; Özdemir, V. (2014) The epiknowledge of socially responsible innovation. [Link] [DOI] | |
| 2014 | Özdemir, V.; Downey, R.A.; Lin, B.; Dove, E.S.; Özkan, B.; Warnich, L.; Ferguson, L.R. (2014) Special Issue oMICS in AFRICA: Power to the people - Moving 21st century integrative biology from lab to village to innovation ecosystems. [Link] [DOI] | |
| 2013 | Özdemir, V.; Llerena, A.; McKinnon, R.A.; Srivastava, S.; Dove, E.S.; Ferguson, L.R.; Masellis, M.; Nair, B.; Gurwitz, D.; Warnich, L. (2013) CPPM 2013 onward: Building a socio-technical GPS for global personalized medicine - A welcome to editors-in-chief Adrián LLerena (Spain) and Ross A. McKinnon (Australia). [Link] [DOI] | |
| 2013 | Dove, E.S. (2013) Questioning the governance of pharmacogenomics and personalized medicine for global health. [Link] [DOI] | |
| 2013 | Dove, E.S.; Özdemir, V. (2013) 'Regular science' is inherently political. [Link] [DOI] | |
| 2013 | Özdemir, V.; Borda-Rodriguez, A.; Dove, E.S.; Ferguson, L.R.; Huzair, F.; Manolopoulos, V.G.; Masellis, M.; Milius, D.; Warnich, L.; Srivastav, S. (2013) Public health pharmacogenomics and the design principles for global public goods - moving genomics to responsible innovation. [Link] [DOI] | |
| 2013 | Dove, E.S.; Özdemir, V. (2013) All the postgenomic world is a stage: The actors and narrators required for translating pharmacogenomics into public health. [Link] [DOI] | |
| 2012 | Özdemir, V.; Fisher, E.; Dove, E.S.; Burton, H.; Wright, G.E.B.; Masellis, M.; Warnich, L. (2012) End of the beginning and public health pharmacogenomics: Knowledge in 'Mode 2' and P5 Medicine. [Link] [DOI] | |
| 2012 | Dove, E.S. (2012) To leave no stone unturned: The launch of a perspectives section for the journal. [Link] [DOI] | |
| 2012 | Knoppers, B.M.; Dove, E.S.; Litton, J.E.; Nietfeld, J.J. (2012) Questioning the limits of genomic privacy. [Link] [DOI] | |
| 2012 | Dandara, C.; Adebamowo, C.; de Vries, J.; Dove, E.S.; Fisher, E.; Gibbs, R.A.; Hotez, P.J.; Kickbusch, I.; Knoppers, B.M.; Masellis, M.; Oestergaard, M.Z.; Pang, T.; Rotimi, C.N. (2012) An idea whose time has come? An African foresight observatory on genomics medicine and data-intensive global science. [Link] [DOI] | |
| 2012 | Dove, E.S.; Özdemir, V.; Joly, Y. (2012) Harnessing omics sciences, population databases, and open innovation models for theranostics-guided drug discovery and development. [Link] [DOI] | |
| 2011 | Kamal, S.M.; Warnich, L.; Ferguson, L.R.; Srivastava, S.; Ray, S.; Avard, D.; Joly, Y.; le Huynh, M.; Page, M.; Masellis, M.; Dove, E.S.; Gurwitz, D.; Ozdemir, V. (2011) Forward look: Tenth anniversary of the human genome sequence and 21st century postgenomics global health - A close up on Africa and women's health. [Link] [DOI] | |
| 2011 | Dove, E.S.; Joly, Y.; Knoppers, B.M. (2011) Trade-secret model: Legal limitations. [Link] [DOI] |
Book Chapter
| Year | Publication | |
|---|---|---|
| 2024 | Joly, Y.; Dove, E.; Knoppers, B.M.; Nicol, D. (2024) 'The GA4GH Regulatory and Ethics Work Stream (REWS) at 10: An Interdisciplinary, Participative Approach to International Policy Development in Genomics' In: Perspectives in Law, Business and Innovation. [Link] [DOI] | |
| 2022 | Chen, J.; Dove, E.S.; Bhakuni, H. (2022) 'Explicit consent and alternative data protection processing grounds for health research' In: Research Handbook on EU Data Protection Law. [Link] [DOI] | |
| 2021 | Dove, E. (2021) 'Research Ethics Review' In: The Cambridge Handbook of Health Research Regulation. [Link] [DOI] | |
| 2018 | Dove, E.S. (2018) 'Collection and protection of genomic data' In: Routledge Handbook of Genomics, Health and Society. [Link] [DOI] | |
| 2018 | Mascalzoni, D.; Dove, E.S.; Rubinstein, Y.; Dawkins, H.J.S.; Kole, A.; McCormack, P.; Woods, S.; Riess, O.; Schaefer, F.; Lochmüller, H.; Knoppers, B.M.; Hansson, M. (2018) 'International charter of principles for sharing bio-specimens and data' In: Getting to Good: Research Integrity in the Biomedical Sciences. [Link] [DOI] | |
| 2017 | Dove, E.S.; Laurie, G.T.; Knoppers, B.M. (2017) 'Data Sharing and Privacy' In: Genomic and Precision Medicine: Foundations, Translation, and Implementation: Third Edition. [Link] [DOI] | |
| 2015 | Dove, E.S.; Phillips, M. (2015) 'Privacy law, data sharing policies, and medical data: A comparative perspective' In: Medical Data Privacy Handbook. [Link] [DOI] | |
| 2015 | Dove, E.S.; Joly, Y.; Knoppers, B.M. (2015) 'International genomic cloud computing: ‘Mining’ the terms of service' In: Privacy and Legal Issues in Cloud Computing. [Link] [DOI] |
Edited Book
Certain data included herein are derived from the © Web of Science (2024) of Clarivate. All rights reserved.
Teaching Interests
Law of Torts (LW151)
Medical Law (LW317)
Health Privacy Law (LW654)